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Beyond the Q [Video]
2015 Impact Report
Other NICHQ Sites
Online Learning Center
These videos, developed by WISCH teams across the country, inform and help people with sickle cell trait and sickle cell disease--and the healthcare providers that care for them.
This group of resources and tools is most relevant to providers in the acute care or emergency department setting.
This group of resources is useful for patients, providers and representatives of community based organizations who are involved in coordinating care for patients.
This group of resources is useful for providers looking to share information with patients about the benefits and risks of using hydroxyurea.
This group of resources can be used by providers to educate patients about sickle cell disease, sickle cell trait and screening.
This group of resources can be used by providers to help educate patients on how to monitor pain crises and responses to medication.
This group of resources can be used by providers who work with adolescents to ensure they have the information they need as they move into adulthood.
This toolkit includes educational materials about sickle cell trait and sickle cell disease to help providers counsel individuals and families who have recently been diagnosed.
A report that details recommendations for redesigning clinical delivery and public health programs, broad health policy and the sickle cell disease treatment demonstration program to improve the quality of care for children and adults with sickle cell disease.
The purpose of this model protocol is to provide clinicians, nurses, allied health professionals, community-based organizations and public health agencies with recommendations and strategies to improve care provided to individuals with sickle cell disease and trait.
A guide for health care providers that details strategies and insights for improving the management of pain episodes in emergency departments or day hospitals for both pediatric and adult patients with sickle cell disease.
Policy for using our website and any content contained within.
A listing of all the main pages and sections on this website.