Medical Home/Care Coordination Resources
People living with sickle cell disease often have multiple and complex medical needs, so it is ideal to be able to coordinate care among various specialties. This group of resources is useful for patients, providers and representatives of community based organizations who are involved in coordinating care for patients.
- Individual Care Plans
- Health Maintenance Tracking Tools
- Mental Health Screening
These resources were developed through the Working to Improve Sickle Cell Healthcare (WISCH) projects. WISCH is NICHQ’s multi-year umbrella name for two sickle cell projects, the Sickle Cell Disease Treatment Demonstration Program (SCDTDP) and the Sickle Cell Disease Newborn Screening Program (SCDNBSP). As the National Coordinating Center for these programs, NICHQ is happy to share guidance, tools and resources that teams from around the country have created, tested or used to improve care for patients with sickle cell disease.