Screening and Trait Resources
Though carriers of the sickle cell trait do not have the same symptoms as those with sickle cell disease, it is important for individuals to know their status and how it can impact them and their families. Individuals often become aware of their status through community health fairs or during pregnancy, when screening for sickle cell disease and general education are offered. This group of resources can be used by providers to educate patients about sickle cell disease, sickle cell trait and screening.
- Educational and Counseling Strategies
- Pre- and Post-Tests
These resources were developed through the Working to Improve Sickle Cell Healthcare (WISCH) projects. WISCH is NICHQ’s multi-year umbrella name for two sickle cell projects, the Sickle Cell Disease Treatment Demonstration Program (SCDTDP) and the Sickle Cell Disease Newborn Screening Program (SCDNBSP). As the National Coordinating Center for these programs, NICHQ is happy to share guidance, tools and resources that teams from around the country have created, tested or used to improve care for patients with sickle cell disease.