Self Management Resources
One of the best ways of managing sickle cell disease is for patients to learn how the disease affects them personally and how to respond to their different symptoms as they arise. This group of resources can be used by providers to help educate patients on how to monitor pain crises and responses to medication. This can help both to identify situations that may worsen symptoms and to develop plans for managing pain if it occurs.
- Patient Self Management Training
- Provider Education to Enhance Patient Self Management
These resources were developed through the Working to Improve Sickle Cell Healthcare (WISCH) projects. WISCH is NICHQ’s multi-year umbrella name for two sickle cell projects, the Sickle Cell Disease Treatment Demonstration Program (SCDTDP) and the Sickle Cell Disease Newborn Screening Program (SCDNBSP). As the National Coordinating Center for these programs, NICHQ is happy to share guidance, tools and resources that teams from around the country have created, tested or used to improve care for patients with sickle cell disease.