Thanks to advances in care and education, individuals with sickle cell disease are living longer than ever. This means that providers are now facing a new challenge: offering adequate care to patients in adult settings. For this reason, it’s important for individuals to know their disease status, how to manage symptoms, and complete the transition from pediatric to adult care. The resources in this section guide providers who work with adolescents to ensure they have the information they need as they move into adulthood.
- Education for Patients
- Education/Guidelines for Providers
- Transition Checklists
- Transition Policies
These resources were developed through the Working to Improve Sickle Cell Healthcare (WISCH) projects. WISCH is NICHQ’s multi-year umbrella name for two sickle cell projects, the Sickle Cell Disease Treatment Demonstration Program (SCDTDP) and the Sickle Cell Disease Newborn Screening Program (SCDNBSP). As the National Coordinating Center for these programs, NICHQ is happy to share guidance, tools and resources that teams from around the country have created, tested or used to improve care for patients with sickle cell disease.