Sickle Cell Video Resources

Videos to inform and help people with sickle cell trait and sickle cell disease--and the healthcare providers that care for them

The Working to Improve Sickle Cell Healthcare (WISCH) project is NICHQ’s multi-year umbrella name for two sickle cell projects: the Sickle Cell Disease Treatment Demonstration Program (SCDTDP) and the Sickle Cell Disease Newborn Screening Program (SCDNBSP). As the National Coordinating Center for these programs, NICHQ is happy to share guidance, tools and resources that teams from around the country have created, tested or used to improve care for patients with sickle cell disease.

Improving Care for People with Sickle Cell Disease
In this video, healthcare providers throughout the country discuss strategies for overcoming the obstacles of sickle cell disease. Through NICHQ's Working to Improve Sickle Cell Healthcare (WISCH) project, teams are using quality improvement methods to address these changes. [Source: NICHQ; Published: 2013]

Additional Videos from State Teams

Choosing a Primary Care Doctor
In this video, healthcare professionals and individuals with sickle cell disease discuss the importance of having a primary care physician, in addition to a specialist such as a hematologist. [Source: iHOMES for SCD Network; Published: 2012]

Seeking Healthcare for Pain
People with sickle cell disease face numerous healthcare challenges, one of which is dealing with extreme pain. In this video, individuals with sickle cell disease describe the frustrating and discouraging experiences they have had when seeking adequate care for their pain. [Source: Johns Hopkins Medicine; Published: 2012]

Sickle Cell Trait Awareness
Many people are confused about the difference between sickle cell disease and sickle cell trait. This video clears up this confusion and answers many other questions about sickle cell trait and the importance of knowing whether you have the trait, particularly when you are planning to start a family. [Source: St. Jude Children's Research Hospital; Published: 2011]

Sickle Cell Trait Awareness video still